6th Annual Tevis Auto Service Charity Golf Outing
As a small business, we are very proud and involved in our community, so when we started this in 2014, our primary goal was to raise money to support local families and charities. Over the past 5 years we have been able to raise over $17,000. Each year we select a new family or charity to support which allows us to raise awareness and make contributions to a wide variety of causes. This year, the golf outing will take place on Saturday, June 8, 2019 at Strawberry Ridge Golf Course in Harmony, PA and will benefit The Children’s Institute.
The Children’s Institute
The Children’s Institute was established in 1902 to improve the quality of life for children, young people, and their families by providing specialty physician and therapy services that enables children to reach their potential. They are committed to providing high quality, effective medical and therapy services to children and are continually working to advance their treatment methods to provide the best and most advanced therapeutic interventions for children
Amazing Kid Profile: Evelyn
Evelyn is a vibrant and kind-hearted 5-year-old whose smile can light up a room. When she was born, she was diagnosed with Agenesis of the Corpus Callosum, an extremely rare condition that is characterized by a partial or complete absence of an area of the brain the connects the two cerebral hemispheres. Her first encounter with The Children’s Institute was when she was 11 months old and she was an inpatient at the Squirrel Hill location for a month. Since then, Evelyn has received weekly therapy at the Wexford location and continues to surpass all expectations and goals. Evelyn is just one of the many children that have been helped by The Children’s Institute.
Spotlight on Rare Diseases
Donny Meyer, Jr. was diagnosed with Ectrodactyly-ectodermal dysplasia (EEC) when he was 10 years old. EEC syndrome is a rare form of Ectodermal Dysplasia and symptoms can manifest in a variety of ways, including missing or irregular fingers and/or toes; abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. Donny had a variety of medical issues from birth and after years of doctors’ visits, surgeries, and procedures, Donny’s parents, Don and Loretta, were finally able to find a specialist at Johns Hopkins who was able to diagnose Donny. Donny battled his disease valiantly, but ultimately passed away at the age of 28.
Evelyn and Donny are among the 25-30 million Americans impacted by rare diseases, classified as any disease that affects fewer than 200,000 people. While Donny was never seen at The Children’s Institute, children with a variety of diseases and disorders are routinely seen there and receive the medical services, therapy, and specialty services they so desperately need. All proceeds from the 6th Annual Charity Golf Outing will be donated to the Wexford location of The Children’s Institute to help more children like Evelyn and Donny.